Wednesday, January 21, 2009

Gettin' Nervous

OK, not a big deal. It's just that in the next 48 hours I'll get bits and pieces of information that will dramatically affect my prognosis from here forward.

I know, this is "just" a CT Scan, not the more comprehensive PET Scan. But they can't do a PET Scan yet so this CT Scan is my first feedback to let me know if the treatment worked or not. If you get out of the gate with clean scans after treatment -- this CT Scan and, later, the PET Scan -- the prognosis goes way up compared to if these scans come back with signs of lingering Cancer.

So, yeah, I'm pretty nervous.

My first appointment is with Dr. Tsue tomorrow morning. Like I said a few days ago, I THINK he'll only review part of the CT Results. I'll then get a more detailed review at my oncologist appointment on Friday afternoon. Not sure why that is but that's the way I understand it's going to play out.

My sleep continues to be a problem. Wonder why?

But I REALLY struggle to stay up past 8:00 or so then wake up in the middle of the night some time. Sometimes it's 5-ish hours of sleep. Sometimes it's a little more. But sleeping from 8:00 until 3:00 am is still not right. I've got to break the cycle somehow but, honestly, when 8:00-ish gets here it's lights out, no matter where I am or what I'm doing. Jenny and I are trying to figure this out but without success to date.

Tongue and face exercises are going well, I guess. Not sure what to expect in what time frame. Mucositis and fatigue are really my two biggest problems right now. Not eating is a close 3rd right behind them but that's an inconvenience and doesn't REALLY interfere with my life like the other two are.

I probably won't post again until Friday afternoon or evening once I have all my results in from my CT Scans. That's unless Dr. Tsue surprises me tomorrow morning and gives me the complete rundown.

1 comment:

NancyJ said...

Now I'm getting nervous too! No really, I guess I'm just more anxious for it to HURRY UP AND GET HERE!!! It's the anticipation and waiting that's more frustrating than anything!

Well...I'll be holding my breath until your Friday post. (OK...maybe not HOLDING my breath, but at least breathing shallow until then!)