What Time is It?

Saturday night/Sunday morning now.

Alice, Ron and Jessica came over this evening. Being the host that I am, I fell asleep in the recliner about 8:00. I woke up about 12:30 with everyone gone and just the family here. Pretty much the norm, unfortunately. Just can hardly stay awake past 8:00 or 9:00 no matter where I am or what's going on around me.

Tonight that's translated into being pretty much awake here at 2:00 am. Sophie happens to be awake also but is eating now and we hope will be asleep again in a few minutes.

Progress continues on the health front. Obviously the fatigue thing still has some work to do. When I'm awake I have more energy than I used to but I'm still pretty tired most of the time.

Mouth pain continues to improve. I'm SLOWLY cutting back on my pain meds. The worst pain occurs when I yawn. Unfortunately that seems to happen quite a bit. Refer to previous paragraph about fatigue.

Mucositis continues to be a problem. I'm ready for this to be done. Very little progress, if any, on this front.

Still not eating anything at all by mouth. I tried some Jello the other day. MILD problems swallowing but the biggest issue is that nothing tastes good. On the more foolish front, I tried a small bite of a small piece of candy yesterday. It was there, it looked really good, so I bit off a small piece. Mistake. It tasted terrible and the pain was pretty fun just trying to do a little bit of chewing and, then, trying to get the chocolate and coconut out of my teeth. Any future food experiments will be on such daring items as jello or oatmeal. Something requiring no chewing whatsoever. Once I have those mastered we'll see about graduating to something requiring a little bit of chewing.

All in all, making progress but, still, not as fast as my impatient self would like. I'm really getting the urge to eat but my taste buds -- not to mention my pain levels -- just aren't ready.

Sophie and Emily are home now and trying to create some routine. Not really there yet but she's only a few days old so there's time.